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Do you know someone with Parkinson’s disease? Do you have PD yourself? Are you aware of the common symptoms? Do you know the options for help in our region?
Over 5,000 people live with Parkinson’s disease in northern Nevada, and there are over 90,000 new diagnoses each year in the U.S. Parkinson’s disease is the fastest-growing neurodegenerative disease in the world. While it is often thought of as an “old person’s disease,” PD affects people of all ages, with 10% of cases diagnosed under the age of 50.
Parkinson’s Disease: What you should know
Parkinson’s disease occurs when brain cells that produce dopamine—a chemical responsible for coordinating movement — begin to die. This loss of dopamine disrupts movement and coordination, leading to symptoms like tremors, slowness, stiffness, walking difficulty, and balance issues. There are also symptoms that are less visible, such as small handwriting, depressed mood, constipation, soft voice and many others.
Although there is no cure for Parkinson’s, the disease can be managed through medication and exercise. However, not all symptoms can be addressed by medications alone. It’s essential to build a supportive network of healthcare professionals, as treatment often requires a team effort. The goal is to improve quality of life, enhance mobility, and maintain mental sharpness.
The Parkinson Support Center of Northern Nevada: A lifeline for the community
The Parkinson Support Center of Northern Nevada is the only local organization dedicated to supporting those affected by Parkinson’s disease. PSCNN offers programs, education, and advocacy to help those living with PD. Their vision is simple: “No one has to face Parkinson’s disease alone.”
PSCNN provides various services, including PD community groups where patients and caregivers can share experiences and hear from experts.
The center also offers a Mentor Program that pairs newly diagnosed individuals with someone who has lived with the disease. In addition, their helpline offers information about local resources and support services.
PSCNN is also producing a series of videos featuring local people’s stories about living with Parkinson’s. These videos can be accessed on PSCNN’s YouTube channel and their website, www.pscnn.org.
Educational programming and annual events
Learning about Parkinson’s is critical for living well with the disease. PSCNN provides educational programming almost every month, covering topics ranging from new medical research to nutritional advice and legal considerations.
These programs are geared to individuals with PD and caregivers. PSCNN also provides in-service training healthcare professionals and an introduction to Parkinson’s presentation for the general public. Additionally, the center hosts an annual Movement and Wellness Fair each fall, bringing together exercise providers, therapists, and other services that help people with PD maintain their mobility.
Upcoming events in April: Get involved and show your support
April is Parkinson’s Disease Awareness Month, and PSCNN has several events planned to raise awareness and support their mission:
• April 1: Ribbon cutting and proclamations: Join us as we kick off Parkinson’s Disease Awareness Month with a ribbon-cutting ceremony and proclamations recognizing the importance of raising awareness.
• April 5: Music & Motion 2.0: Enjoy an afternoon of music, dancing, and fundraising for Drive Toward a Cure, while raising awareness for Parkinson’s disease.
• April 12: Education series presentation: Learn from experts about Parkinson’s disease. This session will offer valuable tools for individuals with PD and caregivers.
• April 25: Veterans and PD workshop: This workshop will focus on the unique challenges veterans face with Parkinson’s disease and provide resources to help manage symptoms.
• June 9: Parkinson’s Classic golf tournament: While this event takes place in June, it’s a key opportunity to support PSCNN’s efforts while enjoying a round of golf.
How you can help
You can make a difference this month by supporting Parkinson’s disease awareness:
• Attend events: Join us at one or more of the events happening in April.
• Donate: Your contributions help PSCNN continue offering essential services for those affected by Parkinson’s disease.
• Spread the word: Share information about Parkinson’s disease and upcoming events to help raise awareness in your community.
A community coming together
Parkinson’s Disease Awareness Month serves as a reminder that we are stronger together. Whether you are living with PD, supporting a loved one, or simply want to make a difference, your involvement can have a lasting impact.
The Parkinson Support Center of Northern Nevada is here to provide resources, programs, and events to support those affected by Parkinson’s disease. Let’s unite to raise awareness, offer support, and drive progress toward finding a cure.
For information, visit www.pscnn.org.